Archive for January, 2010

Jack recovering in ICU

Thursday, January 21st, 2010

Thursday, 7:30am

Jack had a relatively restful night and is still in the Critical Care Unit.  Overnight he started breathing on his own again, which is really positive.  The doctors are hopeful that Jack can come back up to his room on 5C  today.  Jack now needs to recover to a point that doctors can proceed with testing the language function in his brain.  We are hopeful that this will happen today or tomorrow.  Once they are able to get this information, we are really hopeful that they will be able to present us with a surgical plan to remove the part of Jack’s brain that is causing the seizures.  The next surgery may be next Monday.

Please continue to pray for Jack, our family, and his medical team.  Specifically, please pray that Jack’s little body continues to be strong throughout this journey.   His strength continues to amaze us.


Jack out of emergency surgery

Wednesday, January 20th, 2010

Wednesday, 4:00pm

Jack is out of his emergency surgery, which took six hours.  He had a large blood clot on his brain, which caused pressure and swelling, and his team has been able to correct it.   The team was also able to leave the grid on his brain in place (which was inserted on the first surgery), which is an essential part to be able to continue testing for Jack’s next surgery.  Jack is back in the ICU now and has assisted breathing during his post-op recovery.

Thank you for all of your prayers.  Please continue to pray that Jack can be strong while recovering from his second brain surgery within three days.


Jack is in emergency surgery

Wednesday, January 20th, 2010

Overnight Jack had a complication with his recovery and this morning it was discovered that he has bleeding and swelling on his brain.  He has been rushed back into emergency surgery and his team feels confident that they can correct the problem.  They are hoping that they can leave the grid from the first surgery still in place and still proceed with additional testing on his brain in the days to come.

Please pray for Jack, our family, and Jack’s medical team.


Jack is out of the ICU!

Tuesday, January 19th, 2010

We are very encouraged that Jack’s recovery is going as planned so far!

Post-surgery, Jack remained unconscious yesterday afternoon in the ICU and rested relatively comfortably overnight.  He woke up a number of times throughout the night, but for the most part his pain was managed well.

I am in awe of how he is doing this and am amazed by the other children around him too.

We are also so grateful to Jack’s medical team.  During yesterday’s surgery, up to 20 people were in the operating room at the same time!

Jack had a CT scan this morning, which confirmed that the surgery went as planned yesterday, and is now resting up on 5C.  He drifts in and out of sleep and remains quite groggy.  He doesn’t appear to be in too much pain and, understandably, only gets really bothered when being poked and prodded.  The doctors are now analyzing his seizures and are hoping to do more testing tomorrow.  Jack’s nurses are also incredible and treating Jack like the special little guy he is.

As for Dave and I, we are both holding up really well so far.  We’ve been able to get some sleep and I was able to get out for a run this morning.

Please continue to pray for Jack’s recovery and that the information the doctors are gathering will lead to Jack being able to have the second surgery, which represents a potential cure for him.

And please continue your notes, thoughts, cards and prayers.  They are really making a huge difference to Jack!

Lots of love,


Jack recovering from surgery in ICU

Monday, January 18th, 2010

Jack arrived at SickKids at 6am today and was quite happy to play his DS the entire time leading up to surgery.  The surgeons even let him fall asleep with his DS still in hand!  I am so proud of what a brave boy he is.  He had no anxiety and thought the OR room was really interesting with so many computers in it.

His first brain surgery is now complete and he is recovering in the SickKids ICU.  The surgery went as planned and the surgeons are happy with his progress so far.

The next couple of days will be very difficult, as Jack will undergo lots of testing and evaluation to better understand his seizures.   If all goes as planned, Jack’s next surgery could be as soon as this Friday.  This surgery would involve the resection (removal) of part of his left frontal lobe.

Thank you so much for all of your kind thoughts, cards, and prayers.  It is incredible throughout this journey how loved and supported we feel.  Each note, prayer and email feels like a big hug.  THANK YOU!


Jack is having brain surgery on January 18th

Sunday, January 3rd, 2010

Jack will be having two brain surgeries this month at SickKids to try to control his seizures.  His first surgery is scheduled for Monday, January 18th at 8am. This surgery involves the removal of part of his skull.  The neurosurgeon will then place a grid panel, with electrodes attached, onto his brain and then close his head back up, with the electrode wires coming out.  The surgery is expected to last 6 hours and he will then be transferred to the Critical Care Unit (CCU). Once he is stable, he will move to the 5C Neurosurgery ward to recover.  In the days that follow, the grid panel and electrodes will be used to better understand Jack’s seizures, such as where they are originating, and also to create a “map” of his brain.

The date for his second surgery is unknown at this time, but may be as early as Friday, January 22nd.  This surgery will involve the removal of the grid panel and then the resection (removal) of a portion of his left frontal lobe.  This surgery is also expected to last 6 hours and post-surgery Jack will go back to the CCU and then back up to 5C.

Jack knows that he will be spending a lot of time at SickKids during January/February and that he needs an operation.  We are blessed that he has no anxiety about the surgery yet.  He is staying home from school in the weeks leading up to surgery now to avoid exposure to germs.  We are so proud of what a brave boy Jack is and continue to be inspired by his positive attitude despite what he endures on a daily basis.

Please pray for Jack, his 3 yr old brother Christopher, Dave and myself as we prepare for these surgeries.  Please also pray for Jack’s medical team, as they prepare to take care of Jack.  We are very blessed that Jack has this opportunity, as many children with seizures don’t, and we have HOPE that this will enable Jack to lead a healthier life.