Jack's Surgery Blog

Thursday, 7:30am

Jack had a relatively restful night and is still in the Critical Care Unit.  Overnight he started breathing on his own again, which is really positive.  The doctors are hopeful that Jack can come back up to his room on 5C  today.  Jack now needs to recover to a point that doctors can proceed with testing the language function in his brain.  We are hopeful that this will happen today or tomorrow.  Once they are able to get this information, we are really hopeful that they will be able to present us with a surgical plan to remove the part of Jack’s brain that is causing the seizures.  The next surgery may be next Monday.

Please continue to pray for Jack, our family, and his medical team.  Specifically, please pray that Jack’s little body continues to be strong throughout this journey.   His strength continues to amaze us.

Jodi

Wednesday, 4:00pm

Jack is out of his emergency surgery, which took six hours.  He had a large blood clot on his brain, which caused pressure and swelling, and his team has been able to correct it.   The team was also able to leave the grid on his brain in place (which was inserted on the first surgery), which is an essential part to be able to continue testing for Jack’s next surgery.  Jack is back in the ICU now and has assisted breathing during his post-op recovery.

Thank you for all of your prayers.  Please continue to pray that Jack can be strong while recovering from his second brain surgery within three days.

Jodi

Overnight Jack had a complication with his recovery and this morning it was discovered that he has bleeding and swelling on his brain.  He has been rushed back into emergency surgery and his team feels confident that they can correct the problem.  They are hoping that they can leave the grid from the first surgery still in place and still proceed with additional testing on his brain in the days to come.

Please pray for Jack, our family, and Jack’s medical team.

Jodi

We are very encouraged that Jack’s recovery is going as planned so far!

Post-surgery, Jack remained unconscious yesterday afternoon in the ICU and rested relatively comfortably overnight.  He woke up a number of times throughout the night, but for the most part his pain was managed well.

I am in awe of how he is doing this and am amazed by the other children around him too.

We are also so grateful to Jack’s medical team.  During yesterday’s surgery, up to 20 people were in the operating room at the same time!

Jack had a CT scan this morning, which confirmed that the surgery went as planned yesterday, and is now resting up on 5C.  He drifts in and out of sleep and remains quite groggy.  He doesn’t appear to be in too much pain and, understandably, only gets really bothered when being poked and prodded.  The doctors are now analyzing his seizures and are hoping to do more testing tomorrow.  Jack’s nurses are also incredible and treating Jack like the special little guy he is.

As for Dave and I, we are both holding up really well so far.  We’ve been able to get some sleep and I was able to get out for a run this morning.

Please continue to pray for Jack’s recovery and that the information the doctors are gathering will lead to Jack being able to have the second surgery, which represents a potential cure for him.

And please continue your notes, thoughts, cards and prayers.  They are really making a huge difference to Jack!

Lots of love,

Jodi